TANZANIA - Albinism in Tanzania: what can be done to break the stigma (by T de Groot) [The Conversation, June 2021]

Title:

Albinism in Tanzania: what can be done to break the stigma

 

Author:

Tjitske de Groot

Researcher and Lecturer, Faculty of Psychology and Educational Sciences, Vrije Universiteit Brussel

 

Published:

The Conversation, 11 June 2021

https://theconversation.com/albinism-in-tanzania-what-can-be-done-to-break-the-stigma-162307

 

From the article:

In Tanzania, a variety of local myths surround albinism. For example, people with albinism are believed to be ghosts and their body parts are said to bring good fortune. This myth caused the killing of many people with albinism for their body parts. Between 2000 and 2019 in Tanzania, 76 people with albinism were killed and 182 people survived physical attacks.

 

Malawian mothers’ experiences of raising children living with albinism: A qualitative descriptive study [Scholarly Article - African Journal of Disability, 2021]

Title:

Malawian mothers’ experiences of raising children living with albinism: A qualitative descriptive study 

 

Authors:

Naomi Likumbo, Tania de Villiers & Una Kyriacos 

All Division of Nursing and Midwifery, Department of Health and Rehabilitation Sciences, Faculty of Health Sciences, University of Cape Town, Cape Town, South Africa

 

Published:

African Journal of Disability, Volume 10, a693,  April 2021

https://ajod.org/index.php/ajod/article/view/693

From the abstract:

Background: Albinism in humans is characterised by a reduced amount of pigment (melanin) present in the skin, hair follicles and the eye; approximately 7000–10 000 Malawians of all ages are affected. Children with these features face extreme forms of human rights abuses, even death.  

 

Objectives: This study aims to describe Malawian mothers’ experiences, perceptions and understanding of raising children with albinism (CWA).