Title:
Malawian mothers’ experiences of raising children living with albinism: A qualitative descriptive study
Authors:
Naomi Likumbo, Tania de Villiers & Una Kyriacos
All Division of Nursing and Midwifery, Department of Health and Rehabilitation Sciences, Faculty of Health Sciences, University of Cape Town, Cape Town, South Africa
Published:
African Journal of Disability, Volume 10, a693, April 2021
From the abstract:
Background: Albinism in humans is characterised by a reduced amount of pigment (melanin) present in the skin, hair follicles and the eye; approximately 7000–10 000 Malawians of all ages are affected. Children with these features face extreme forms of human rights abuses, even death.
Objectives: This study aims to describe Malawian mothers’ experiences, perceptions and understanding of raising children with albinism (CWA).